Riding Blaine, the Train of Pain

March 18, 2006

I saw my primary care physician on Monday and he did the two things I expected him to do. 1. He dismissed the notion of a possible endocrinological connection without the slightest consideration, and 2. He asked me what I wanted him to do. He ALWAYS asks me that, and it’s really starting to wear thin.

Usually, I reply to that idiotic question by telling him what to do, but, this time, I responded by bursting into tears. I sobbed, “YOU’RE the doctor. I didn’t go to medical school; YOU did. What I want you to do is HELP me. If you don’t, I’m going to kill myself, because I can’t live this way much longer.”

That got his attention. He wrote me a referral to a neurologist. As I mentioned before, I’ve been to neurologists in the past without getting relief from these headaches, but I’m willing to give it another try. I have to do SOMETHING.The problem with neurologists is that they always want to treat me for migraines, and I know that’s not what these headaches are. I’ve gone the migraine meds route. I’ve done the caffeine withdrawal therapy. I’ve taken muscle relaxers and anti-inflammatories. I’ve had EEGs and MRIs. I’ve been to a pain management specialist, and went for injections in the cervical spine.

Nothing I’ve tried has worked. Instead of seeing the least bit of improvement, my condition is getting worse. I STILL have the headache that began on February 22nd. I am also experiencing severe pain in my neck and shoulder muscles. There is nerve entrapment in the cervical spine, and I have gone for physical therapy, also without relief. How long can a person be expected to tolerate unremitting pain?

I don’t consider myself to have a low threshold for pain. Both of my children were delivered completely naturally. I once walked on a broken leg. I have lived with Fibromyalgia/Chronic Myofascial Pain Syndrome for many years. I didn’t take the Vicodin that was prescribed after I had spine surgery for a herniated disc, but I do take it when I have these headaches, although it barely touches the pain. This is becoming unendurable, and I am reaching the end of my coping ability.

Does anybody know when Dr. Kevorkian gets out of prison?

Song of the Day: King of Pain by The Police


One Response to “Riding Blaine, the Train of Pain”

  1. yaketyyak said

    Comments from Diaryland:

    Bex – 2006-03-18 08:22:57
    It look like Jack Kevorkian won’t be available until 2019 Steph… not that I’d want you to be contacting him, but I can see you are a desperate woman, and I wish there was something I could do to help you! I think another trip to a neurologist might give you some hope, though. I do know that all doctors pay attention when you mention suicide to them…they don’t want that on their records, of losing a patient that way, so they always go the extra mile when that is mentioned. Be vocal with them about your desperation and I am praying for you!
    Bex – 2006-03-18 08:24:23
    oooooof! That didn’t work. the Url is here: http://dying.about.com/gi/dynamic/offsite.htm?zi=1/XJ&sdn=dying&zu=http%3A%2F%2Fwww.state.mi.us%2Fmdoc%2Fasp%2Fotis2profile.asp%3FmdocNumber%3D284797 guess you don’t have HTML allowed in here…
    Stephanie – 2006-03-18 08:38:27
    Bex, I just loooked over the comments setup here, but don’t see anything about allowing html…? Thanks for the link. I’ll copy and paste it.
    Carol –2006-03-18 09:33:02
    I am so sorry to hear you have to suffer so much. I wish I knew something to help you. Hope something can be done for your pain.
    LA – 2006-03-18 09:36:21
    Does your health plan have a different GP you can see? If you can dump your current one and start fresh with a GP who actually gives a shit you’ll be able to get something more than a grudging neuro referral. What about your gyno? Often they can be a ‘primary care’ doc and can okay referrals to different specialists. I know how frustrating it is to be stuck with a do-nothing incompetent GP and am hoping like hell you can get some real help. NOBODY (except your quack) thinks your pain is no biggie. No more justifying, okay? Even if you were the biggest wuss in the world (and you’re not!) there’s no reason you should have to live like this. You probably had to keep a pain diary for your fibro diagnosis. Start one again for your headache. Record everything. Amount of sleep. The position you slept in. Everything you’ve eaten. When the headache spikes. When, if ever, the pain lets up a little and what you were doing and what time it was. Everything. The more documentation you can provide the better chance a doc will be able to help you when you finally see someone who’s willing to help. Get with your insurer, fire your GP and demand proper medical attention. Please!!!! Much love, ~LA
    Stefani – 2006-03-18 09:55:58
    {{{ Stephanie }}} Wish I could offer more. LA offers good advice. I know starting over with another GP is nothing to look forward to but it might be a good step.
    Bozoette Mary – 2006-03-18 10:08:38
    Yes — what LA said. Maybe you could get the neuro to refer to an endocrinologist? Hugs from me, too.
    Denver doug – 2006-03-18 11:38:46
    Although my Heather has not that very pain of intense headaches, she has been ailing for years. Every once in a while a doctor will run a new test on her — so far without real information revealed. How you ring a bell when you talk about what you said to your doctor. That has been how she feels. One thing I guess an older person should not do is to admit any chest pain on seeing the doc. First thing, into the ER and they are looking for heart attack and not finding one sort of lose interest. After many hours. We pray something is found to help you Milady.
    Texas Peach – 2006-03-18 12:07:09
    What LA and Stefani ands Mary said….I agree. It will suck, but maybe you can find someone with more empathy who will take your pain sewriously. You can get your records transferred so they would have your history. You need some relief girl! It is not fair that you must live in so much pain. Add my hugs to the mix!! *hugs*
    K8 – 2006-03-18 12:45:44
    I also suffere from headaches, but not nearly in your league! One thing that does help is to be sure to drink at least 32 oz. of water a day — more if I can. And have you thought about trying acupuncture? Acupuncture has done some amazing things for me, & it’s non-invasive so it falls in the category of chicken soup: It can’t hurt. My heart aches for you, reading this! I’m hoping you’ll find help soon! And I had that same experience with clinical depression after my hysterectomy — no one was paying attention. Keep going to different doctors, keep looking for information — etc.
    victorvic – 2006-03-18 14:07:42
    ~V~ OUCH! :)…. and whats this “Does anybody know when Dr. Kevorkian gets out of prison?” crap!!!….., this is what you do…., on the day that you are to see this next doctor….. make sure that you take a BIG ASS OAK AX HANDLE, and when the doctor ask you why you have it, just reply in the best sweet voice you have, “TO BUST YOU UP SIDE OF YOUR HEAD IF YOU DONT TAKE CARE OF THIS PROBLEM RGHT NOW!!” 🙂 ~V~
    Kim – 2006-03-18 14:10:21
    Ouch. No good ideas, but you have my prayers and sympathy. Oh yeah, and my heartfelt admiration for being able to choose the perfect song to go with each entry. “There’s a little black spot on the sun, today…”
    Sunshyn – 2006-03-20 14:17:02
    I think the fibromyalgia is sending non-specific nerve pain to your head. But if your neck and shoulders hurt, that could be causing the headache or the headache could be causing that. I love my chiropractor. I get my spine adjusted, and the headache usually goes away. There is also something called craniosacral adjustment I’ve read about on the autism lists — they work on your head, not just your spine. Just a thought…

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